My last entry we were enjoying a lull, an unusual calm, its ongoing to an extent. Both boys still have their moments, but its all manageable, nothing has really tested my composure. Our routine is good, our melt downs are few and minor. We still get no sleep 😴 we are in a pretty gentle tide right now. I’m still waiting and preparing for the storm.
EVOLUTION OF PRESENTATION
8 year old looks very close to getting his official diagnosis now, his quirks are more evident daily and he’s become very aware he is different to his peers, which is heart breaking when your child tells you he has no friends and no one likes him because he is weird. He feels like an outsider. Football, something he loved last year, is now too challenging, the other kids are more self regulating and he still needs direction from the side line, reading the other players is too much. I think his football days are numbered ☹ tennis has been suggested, but not sure how I feel about providing a weapon. Watch this space…..
NO ACTION NEEDED
Smallest rainbow was reviewed in school by the family support worker from the national autistic society, his provision is perfect for him, which considering he’s mainstream school and bilingual, is no small achievement, the right school doesn’t always look how you think it would. After going agaisnt the special ed grain and keeping him mainstream, this is just what I needed to be reassured I made the right choice. School are pretty thrilled with the report too. We are also up to 95% attendance 🍾🎉 Celebrate the small things.
DONT OVER LOOK THE NON RAINBOWS
The two neurotypical kids are doing well, they are also enjoying this semi calm life we currently have. Mum (me) has more time to connect with them, as she is not constantly putting out the fires (metaphorical thus far) of ASD siblings. We have the teenagers love of drama, and the preteens awkwardness and pre puberty conversations, all without wrestling a mid melt down child, or someone hanging off me screaming.
SOMETHING FOR ME
After giving up work to project manage the various services we access, as well as the boys needs, this current lull has allowed me to return to doing some voluntary work, It’s most rewarding and enjoyable I must say. Only a few hours a week so far, but who knows what comes next. Maybe there will even be some chance at meeting that special someone who can replace the electric blanket on keeping me warm at night. Stranger things have happened hey, the nuns life is not one I wish to lead forever…..